Graduate project

Current screening procedures for the Usher Syndrome at residential schools for the deaf

The purpose of this study was to determine how many residential schools for the deaf are currently screening their students for the Usher Syndrome and how many of these schools offer support services to the identified Usher Syndrome student and his family. Forty schools responded. Residential schools were chosen because they have large concentrations of high-risk individuals, the congenitally deaf. The results indicate that 53% of the schools that responded are screening students for the Usher Syndrome. Eighty-four percent of the identified students are older than twelve years old, Eighty-one percent of the students have a profound hearing loss. One-half of the schools with screening programs offer some support services: personal counseling, genetic counseling, curricular modifications, and vocational counseling.